Behçet’s UK (formerly Behçet's Syndrome Society)

Caring for all affected by this rare, complex and lifelong condition; promoting research into the cause, effects, treatment and management of Behçet’s

National Behçet's Centres of Excellence

Find out everything about the National Behçet's Centres of Excellence (CoE) run by NHS England
Including:
Clinic details and contact information
Referral process
CoE history and overview
The Behçet's Patient Support Service
Useful videos

Join Behçet's UK today!

Find out how to join and the benefits of being a member of Behçet's UK.

Behçet's UK Medical Factsheets

Our medical factsheets are written by medical professionals and are for use by members, clinicians and NHS staff.
They cover a wide range of symptoms experinced by patients with Behçet's.

Recent Initiatives:

Behçet's UK News

Northern Ireland Rare Disease Partnership Events

The Northern Ireland Rare Disease Partnership has a couple of upcoming events which may be of interest to those of you in the area affected by Behçet’s. Their AGM & Winter Meeting is happening tomorrow 6th December from 2-4pm in Belfast. Unfortunately registration has officially closed but there could be last minute tickets available so […]

Black Friday? Let’s make it Behçet’s UK Friday!

Like many charities, we rely solely on fundraising from our members and the general public to maintain our services and we don’t receive any government funding. We know it’s an expensive time for many in the run-up to Christmas but the good news is we have many ways for you to support us that won’t […]

Stuck for ideas for stocking fillers this Christmas?

Why not buy some Behçet’s UK merchandise to spread awareness of Behçet’s and help us to raise funds? We have Behçet’s UK pens, keyrings, badges and packs of greeting cards available. If you’d like to order some in time for Christmas, the last dates are as follows: If you’re paying by cheque, post your order […]

CONCORD Focus Group

COordiNated Care Of Rare Diseases (CONCORD) The CONCORD research team would like to find a few more people to take part in the virtual focus group on the 18th November 11-2pm. The group will be discussing the types of care coordination that patients/parents and carers receive and their preferences on types of care coordination, and different […]