We're determined to make a lasting difference


London centre contact details
Behçet's Centre of Excellence,
GP Out of Hours,
Ground Floor,
North Tower,
The Royal London Hospital,
E1 1BB


Liverpool centre contact details
Behçet's Clinic,
Aintree Rehabilitation Day Centre,
University Hospital Aintree,
Lower Lane,
L9 7AL


Birmingham centre contact details
Birmingham Centre of Excellence for Behçet's Disease,
Sandwell and West Birmingham Hospitals Trust,
Birmingham Midlands Eye Centre,
Dudley Road,
B18 7QH

Recent Initiatives:

Behcets Syndrome Society News

Get Set Behçet’s

Follow the link below to raise awareness and money for Behçet’s disease with our new tennis challenge. Get Set Behçet’s

Oral health survey

Lianne Dobson, a Hygiene and Therapy student at Kings College Hospital, is undertaking a project on Behçet’s disease and how it can affect people’s oral health. If you would like to take part, follow the link below to see the questionnaire. http://svy.mk/1QhGZlY

Drug funding survey

Sioned Bourke, a PhD student at Bangor University, is undertaking some research into how the NHS funds expensive drugs for rare diseases. She is asking patients and their carers from the UK to complete an online survey to help with her research. Please click on the link below to access the Bangor University participation information […]

BSS cycling jerseys

You can now purchase Behçet’s Syndrome Society cycling jerseys from Godfrey Sports. Just follow the link below and type Behçet’s Syndrome Society into the ‘Find your club’ box. Godfrey Sports

Northern Ireland survey

Do you live in Northern Ireland? If so, please consider completing this survey on prescription charges. Follow the link below to complete the survey. Prescription charges survey

Access to adalimumab

Genetic Alliance UK is looking for people who would be willing to share their experiences of trying to access adalimumab treatment through the Individual Funding Request (IFR) funding route and who have been unsuccessful/facing an ongoing battle. If you are, or have been, in such a situation, please contact info@behcetsdisease.org.uk and we will pass your details […]

British Paediatric Surveillance Unit Study

The study of children and young people with Behçet’s disease in the UK that is being funded by the BSS and Alder Hey Children’s Charity is due to start in April 2015. Please follow the link below for a leaflet. BPSU Study

Interferon alpha clinical trial results

The clinical trial of interferon alpha 2b in Behçet’s disease has now been published. Please follow the link below for further details. Interferon trial results