Behçet’s UK (formerly Behçet's Syndrome Society)

Caring for all affected by this rare, complex and lifelong condition; promoting research into the cause, effects, treatment and management of Behçet’s

National Behçet's Centres of Excellence

Find out everything about the National Behçet's Centres of Excellence (CoE) run by NHS England
Including:
Clinic details and contact information
Referral process
CoE history and overview
The Behçet's Patient Support Service
Useful videos

Behçet's UK AGM & Conference 2019

Book your FREE place at our AGM & Conference
This year our AGM & Conference will be held in Harrogate on Saturday 19th October 2019.
Find out all the details including how to book by following the link above.

Recent Initiatives:

Behçet's UK News

New Badges and Greeting Cards Available

We have recently updated our range of charity merchandise with some high quality hard enamel pin badges, as well as some new photo greeting cards. The badges are £2 each plus £1.50 postage and packing, although the postage cost can be combined with 5 other small items. Please refer to the order form for more […]

Are you planning to ask a question at our AGM?

If you’re coming to our AGM in Harrogate on October 19th and you already have a question in mind to ask our medical panel, you can send us a message beforehand to let us know. We can then pass your question on to the medical panel before the AGM to give them more time to […]

CONCORD Research Project – Survey Responses Needed!

Genetic Alliance UK are delighted to announce that their CONCORD research project is now live. COordiNated Care Of Rare Diseases (CONCORD) Have your say on how services should be coordinated for patients with rare and undiagnosed conditions. Complete an online survey now: bit.ly/CONCORDsurvey CONCORD is a research study which aims to investigate how services are […]

Bio Behçet’s Trial

The Bio Behçet’s trial The Bio Behçet’s trial aims to understand more about the different ways of treating Behçet’s. It is a randomised controlled trial of two drugs – infliximab (Remicade) and alpha interferon (Roferon-A) – often used to treat Behçet’s disease. Taking part If you have been diagnosed with Behçet’s and have not responded […]