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Caring for those with a rare complex and lifelong disease
The Behçet’s Syndrome Society has been established as a charity for over 25 years (Registered Charity No. 326679) and represents Behçet’s disease patients and their carers in the UK. Equally importantly, we exist for those not yet diagnosed with Behçet’s disease and those who think they may have Behçet’s disease.
London
London centre contact details
Behçet's Centre of Excellence,
GP Out of Hours,
Ground Floor,
North Tower,
The Royal London Hospital,
Whitechapel,
London
E1 1BB
Liverpool
Liverpool centre contact details
Behçet's Clinic,
Aintree Rehabilitation Day Centre,
University Hospital Aintree,
Lower Lane,
Liverpool
L9 7AL
Birmingham
Birmingham centre contact details
Birmingham Centre of Excellence for Behçet's Disease,
Sandwell and West Birmingham Hospitals Trust,
Birmingham Midlands Eye Centre,
Dudley Road,
Birmingham
B18 7QH
Recent Initiatives:
Behcets Syndrome Society News
Founder’s daughter to do parachute jump
Heidi Goodway, the daughter of our founder Judith Buckle, is to celebrate her mother’s commitment to the Behçet’s Syndrome Society by doing a tandem parachute jump. Please support her if you can. She has two sites for sponsorship, and we will keep you posted as to her progress. Do it for charity JustGiving
Real People Magazine Thursday 6th June
Real People magazine out on Thursday the 6th of June has an item about Behcet’s Syndrome. It’s been organised by the PR lady, Sarah Millard, at the Birmingham Centre of Excellence and the lady sharing her patient journey in the article is Erica who is newly diagnosed.
NHS England Clinical Reference Groups patient recruitment
Members might be aware that NHS England has launched a second phase of patient and carer recruitment to a number of its Clinical Reference Groups (CRG’s). Further information is available here: Link.
Specialised Healthcare Alliance
Like us the Specialised Healthcare Alliance (SHCA) has a new website check it out. Link.
Genome magazine
Read the latest issue of “Genome, Research and Society”, a monographic magazine about rare diseases. This is the first time the magazine has been launched in English for all Europe. Link
Welcome
Hi and I’m delighted to welcome you to our new website! We’re aiming for this new website to be dynamic and to be used to advise you of what the Director and Trustees are doing and update you on interesting news related to Behçet’s disease and to the other groups we’re affiliated with, in addition to [...]
MAKE MYHEALTHAPPS.NET WORK FOR YOU
Health Apps is a new website to be launched in November 2013, and brought to you by PatientView. For this website, PatientView is working with the NHS Commissioning Board to develop ways in which the public and patients can find health apps that are safe, reliable and high quality. The project is being funded through [...]
Birmingham Open Day
On Thursday the 16th of May the new Birmingham Centre of Excellence was officially be opened The event, coincides with International Behçet’s Disease Awareness Day. Prof Carl Chinn MBE, and the Mayor of Birmingham were joined by Chris Phillips, Director of the Behçet’s Syndrome Society and Dr Chris Deighton, President of the British Society for [...]
