Behçet’s UK (formerly Behçet's Syndrome Society)

Caring for all affected by this rare, complex and lifelong condition; promoting research into the cause, effects, treatment and management of Behçet’s

National Behçet's Centres of Excellence

Find out everything about the National Behçet's Centres of Excellence (CoE) run by NHS England
Including:
Clinic details and contact information
Referral process
CoE history and overview
The Behçet's Patient Support Service
Useful videos

Join Behçet's UK today!

Find out how to join and the benefits of being a member of Behçet's UK.

Behçet's UK Medical Factsheets

Our medical factsheets are written by medical professionals and are for use by members, clinicians and NHS staff.
They cover a wide range of symptoms experinced by patients with Behçet's.

Recent Initiatives:

Behçet's UK News

Rare Disease Nurse Network

Are you a rare disease nurse? Genetic Alliance UK have been working with the Rare Disease Nurse Network to help set up a peer-to-peer support group for rare disease nurses and care coordinators. To help connect the rare disease nurse community, they invite nurses and care coordinators to take part in this short survey here: https://www.surveymonkey.co.uk/r/RareDiseaseNurseNetwork…

New Badges and Greeting Cards Available

We have recently updated our range of charity merchandise with some high quality hard enamel pin badges, as well as some new photo greeting cards. The badges are £2 each plus £1.50 postage and packing, although the postage cost can be combined with 5 other small items. Please refer to the order form for more […]

Are you planning to ask a question at our AGM?

If you’re coming to our AGM in Harrogate on October 19th and you already have a question in mind to ask our medical panel, you can send us a message beforehand to let us know. We can then pass your question on to the medical panel before the AGM to give them more time to […]

CONCORD Research Project – Survey Responses Needed!

Genetic Alliance UK are delighted to announce that their CONCORD research project is now live. COordiNated Care Of Rare Diseases (CONCORD) Have your say on how services should be coordinated for patients with rare and undiagnosed conditions. Complete an online survey now: bit.ly/CONCORDsurvey CONCORD is a research study which aims to investigate how services are […]