Behçet’s UK (formerly Behçet's Syndrome Society)

Caring for all affected by this rare, complex and lifelong condition; promoting research into the cause, effects, treatment and management of Behçet’s

National Behçet's Centres of Excellence

Find out everything about the National Behçet's Centres of Excellence (CoE) run by NHS England
Including:
Clinic details and contact information
Referral process
CoE history and overview
The Behçet's Patient Support Service
Useful videos

Behçet's UK AGM & Conference 2019

Book your FREE place at our AGM & Conference
This year our AGM & Conference will be held in Harrogate on Saturday 19th October 2019.
Find out all the details including how to book by following the link above.

Recent Initiatives:

Behçet's UK News

CONCORD Research Project – Survey Responses Needed!

Genetic Alliance UK are delighted to announce that their CONCORD research project is now live. COordiNated Care Of Rare Diseases (CONCORD) Have your say on how services should be coordinated for patients with rare and undiagnosed conditions. Complete an online survey now: bit.ly/CONCORDsurvey CONCORD is a research study which aims to investigate how services are […]

Bio Behçet’s Trial

The Bio Behçet’s trial The Bio Behçet’s trial aims to understand more about the different ways of treating Behçet’s. It is a randomised controlled trial of two drugs – infliximab (Remicade) and alpha interferon (Roferon-A) – often used to treat Behçet’s disease. Taking part If you have been diagnosed with Behçet’s and have not responded […]

Help create a national register for people with rare rheumatic diseases

Please see this ‘Patient and Public Involvement’ poster.  PPI is now mandated for all medical research that affects patients.  If you’d like to help, please get in touch with Dr Fiona Pearce to share your views on the topic.  Dr Pearce needs to engage with a small group of people with rare autoimmune rheumatic diseases […]

New Merchandise Available

The first items of our new range of merchandise are now available. We currently have pens and trolley token keyrings and will be adding more new items to the range soon. Head to this page for details on how to order and to download the order form.