We're determined to make a lasting difference

London

London centre contact details
Behçet's Centre of Excellence,
GP Out of Hours,
Ground Floor,
North Tower,
The Royal London Hospital,
Whitechapel,
London
E1 1BB

Liverpool

Liverpool centre contact details
Behçet's Clinic,
Aintree Rehabilitation Day Centre,
University Hospital Aintree,
Lower Lane,
Liverpool
L9 7AL

Birmingham

Birmingham centre contact details
Birmingham Centre of Excellence for Behçet's Disease,
Sandwell and West Birmingham Hospitals Trust,
Birmingham Midlands Eye Centre,
Dudley Road,
Birmingham
B18 7QH

Recent Initiatives:

Behcets Syndrome Society News

ABPI Patient and Carer Survey

The Association of the British Pharmaceutical Industry have commissioned surveys to look from the perspective of patients and carers at treatments. To take part and for more information please follow the links below: Patient Survey: Patient perspectives of treatment including orphan medicines for those with rare diseases: http://www.smartsurvey.co.uk/s/ABPIPatientSurvey Carer Survey: Carer perspectives of treatment including [...]

Patient views sought by the European Commission

Dear Behcet’S Syndrome Society The European Commission—through its unit supporting research and innovation in technologies for ageing and integrated care—is undertaking a short survey. It aims to find out how people who are living with long-lasting illnesses or conditions think that services in the home (like mobile phones, the internet, or personal health monitors) which communicate [...]

GAUK Patient Charter

Genetic Alliance UK today (03.04.14) launch a landmark Patient Charter that highlights the concerns patients have about the new approach the Government and NICE are using to determine whether or not medicines for rare conditions are made available through the NHS Please follow this link.

Make prescription charges fairer: new report and petition

  The Prescription Charges Coalition has published a new report, Paying The Price, based on a survey of over 5,000 people with long-term conditions, which highlights the impact that prescription charges are having on their working lives. Many respondents were struggling to afford essential medication, with serious consequences for their quality of life and long-term health. [...]

Person-centred health and care system

The Behçet’s Syndrome Society is a member of National Voices. To read a blog explaining the debate around patient centred health, follow this link.

Society Merchandise

The Society has a whole new range of merchandise. Click on Society Merchandise for details.

London to Paris Cycle ride

  Tour de Behçet’s! After the inspirational race by Chris Froome, we’ve been inspired to get on our bikes! We can’t guarantee you yellow jerseys or Olympic medals, but we can guarantee you a ‘Grand depart’ from the London Centre of Excellence and a Champs Elysees style finish under the Eiffel Tower in Paris. In [...]

16th International Conference on Behcets 2014

The 16th International Conference on Behçet’s disease arranged by the ISBD will be in Paris on the 18th to 20th September 2014. We are advised that the Patients Conference will take place on Thursday the 18th and Friday the 19th; it will be in English, and the programme is yet to be finalised. As soon as [...]