International organisations

European Organisation for Rare Disorders (EURORDIS)

Promotion of rare disease research, access to new therapies, and participation of informed patients in policy-making.

96 rue Didot
75014 Paris
Tel: +33 1 5653 5210


Rare Connect Behçet’s Syndrome Community

Rare Connect Logo


Rare Connect is a partnership of EURORDIS and NORD (National Organization for Rare Diseases). It provides a global forum for patients with rare diseases to connect with each other.



International Society for Behçet’s Disease

A medical based group bringing together clinicians from all over the world the International Society for Behçet’s Disease (ISBD) (derived from the activities of the International Study Group for Behçet’s Disease formed in 1977) was established at the 9th International Conference on Behçet’s Disease, Seoul, May 2000.