Behçet’s UK (formerly Behçet's Syndrome Society)

Caring for all affected by this rare, complex and lifelong condition; promoting research into the cause, effects, treatment and management of Behçet’s

National Behçet's Centres of Excellence

Find out everything about the National Behçet's Centres of Excellence (CoE) run by NHS England
Including:
Clinic details and contact information
Referral process
CoE history and overview
The Behçet's Patient Support Service
Useful videos

Join Behçet's UK today!

Find out how to join and the benefits of being a member of Behçet's UK.

Behçet's UK Medical Factsheets

Our medical factsheets are written by medical professionals and are for use by members, clinicians and NHS staff.
They cover a wide range of symptoms experinced by patients with Behçet's.

Recent Initiatives:

Behçet's UK News

CONCORD Focus Group

COordiNated Care Of Rare Diseases (CONCORD) The CONCORD research team would like to find a few more people to take part in the virtual focus group on the 18th November 11-2pm. The group will be discussing the types of care coordination that patients/parents and carers receive and their preferences on types of care coordination, and different […]

Christmas Cards – SOLD OUT!

Our fantastic Christmas Cards designed and made by Jan Mather and her mother have once again sold out lightning fast! Thank you very much to those who have ordered some or bought them at our AGM, and our apologies if you missed out this time. You can still support Behçet’s UK this Christmas by ordering […]

Behçet’s UK 2019 Annual Report and Accounts

Behçet’s UK 2019 Annual Report and Accounts are now available to read online here

Rare Disease Nurse Network

Are you a rare disease nurse? Genetic Alliance UK have been working with the Rare Disease Nurse Network to help set up a peer-to-peer support group for rare disease nurses and care coordinators. To help connect the rare disease nurse community, they invite nurses and care coordinators to take part in this short survey here: https://www.surveymonkey.co.uk/r/RareDiseaseNurseNetwork…