Behçet’s UK (formerly Behçet's Syndrome Society)

Caring for all affected by this rare, complex and lifelong condition; promoting research into the cause, effects, treatment and management of Behçet’s

National Behçet's Centres of Excellence

Find out everything about the National Behçet's Centres of Excellence (CoE) run by NHS England
Including:
Clinic details and contact information
Referral process
CoE history and overview
The Behçet's Patient Support Service
Useful videos

2020 Quality of Life Survey

Working in association, the Behçet’s Patients Centres we are launching the 2020 Quality of Life Survey for patients and members diagnosed with Behçet’s

Coronavirus (COVID-19)

Follow the above link to view our statement regarding the current Coronavirus (COVID-19) outbreak.
This will be updated regularly, as and when information becomes available.

Recent Initiatives:

Behçet's UK News

Facebook help wanted

Are you a member of Behçet’s UK? Do you have some time to spare? Would you like to help to support others affected by Behçet’s from the comfort of your home? We are looking for volunteer leaders for our Facebook peer-to-peer support groups.https://www.facebook.com/BehcetsUK/groups/ Our Facebook support groups are still fairly new and are mostly relatively […]

Coronavirus (COVID-19)

Tips for Behçet’s patients to manage anxiety whilst at home during the Coronavirus outbreak

We understand that many of you will be struggling at the moment so we’ve compiled a list of just a few suggestions of things that might help to distract you, and keep you feeling as calm as possible during this difficult time. https://behcets.org.uk/wp-content/uploads/2020/03/BUK-Tips-for-patients-to-manage-anxiety.pdf Follow our latest guidance regarding the outbreak here

Rare Disease Day

Today, February 29th, is Rare Disease Day. Rare diseases and conditions affect 300 million people worldwide. Behçet’s (also known as Behçet’s Disease or Behçet’s Syndrome) is a chronic condition resulting from disturbances in the body’s immune system. This Rare Disease Day help to spread awareness of Behçet’s by sharing our diagram of symptoms of this rare, complex […]