Behcets news Archives


November 2019

Black Friday? Let’s make it Behçet’s UK Friday! |
November 25th, 2019

Like many charities, we rely solely on fundraising from our members and the general public to maintain our services and we don’t receive any government funding.

We know it’s an expensive time for many in the run-up to Christmas but the good news is we have many ways for you to support us that won’t cost you any extra pennies! Check them out below.

So, before you checkout your Black Friday deals, check out if you can make it a Behcet’s UK Friday this year too!

Fundraise while you shop at Amazon

Choose Behcet’s UK as your charity on AmazonSmile and donate 0.5% of the net purchase on all eligible items at no cost to you!  

All orders must be placed at smile.amazon.co.uk – we don’t receive any donations from on orders placed on Amazon.co.uk.

Android users can also order through the Amazon Shopping app. Instructions can be found here. Unfortunately it is currently not possible to order on AmazonSmile if you are an iOS user.

Good news for those who may forget – there are browser extensions available which will automatically re-route you.  Smilematic provide a free add-on for Google Chrome, Firefox and Safari to ensure all your Amazon orders go through AmazonSmile.

Please use a browser whenever possible as sadly there is no AmazonSmile Mobile App.

We’d love it if you could spread the word to all your friends and family. Add one of these extensions to your browser or save the link for AmazonSmile on your laptops, PCs, tablets, and phones – every penny counts!

Fundraise while you shop elsewhere!

We are registered with several shopping websites that you can use to shop through and fundraise for us at the same time at no extra cost to you! They work by having links with big brands and when you make purchases through them, they generate commission which is turned into donations for charities like us. Many thanks to those of you who have signed up already!

For the person who has everything or needs a clearout!

Facebook birthday fundraising is an easy way to ask your Facebook friends to donate to your chosen charity as an alternative gift. Already we have had several people kindly choose us as their charity of choice on their birthday this year. Thank you to all our fantastic fundraisers!

Are you having a clearout over Christmas? Sell your items on eBay and you can choose to donate a portion of your sales to us! If you donate as little as 10% of your auction outcome to Behçet’s UK, eBay will refund your selling fees!

Fundraising isn’t just for Christmas!

Don’t forget to shop this way all year round! 

Find out all the ways you can fundraise for us here on our website and if you need any help please contact Gemma or Deborah by emailing info@behcetsuk.org or calling 0345 130 7328.


Stuck for ideas for stocking fillers this Christmas? |
November 21st, 2019

Why not buy some Behçet’s UK merchandise to spread awareness of Behçet’s and help us to raise funds?

We have Behçet’s UK pens, keyrings, badges and packs of greeting cards available.

If you’d like to order some in time for Christmas, the last dates are as follows:

  • If you’re paying by cheque, post your order to us by Monday 25th November
  • If you’re paying by BACS or PayPal, email us your order by Friday 13th December

For more details on how to order head to this page.


CONCORD Focus Group |
November 12th, 2019

COordiNated Care Of Rare Diseases (CONCORD)

The CONCORD research team would like to find a few more people to take part in the virtual focus group on the 18th November 11-2pm. The group will be discussing the types of care coordination that patients/parents and carers receive and their preferences on types of care coordination, and different aspects of care coordination. It should be a really interesting discussion. All participants will need is a computer with an internet signal. We are looking for patients (18+) and parents or carers of children or adults to take part. If  you know of anyone who may be interested, please ask them to email: holly.walton@ucl.ac.uk or call Holly on 02031083068.

There’s more information about the CONCORD study here on the Genetic Alliance website.


Christmas Cards – SOLD OUT! |
November 11th, 2019

Our fantastic Christmas Cards designed and made by Jan Mather and her mother have once again sold out lightning fast! Thank you very much to those who have ordered some or bought them at our AGM, and our apologies if you missed out this time.

You can still support Behçet’s UK this Christmas by ordering some of our merchandise as Christmas presents.