Behcets news Archives


December 2019

Singing for Behçet’s UK! |
December 23rd, 2019

Evolution Choir, based in Salisbury,  have nominated Behçet’s UK as their ‘dedicated charity’, in recognition of and supportive to group member Cat who has Behçet’s and have already collected £332 from pre-Christmas gigs!

Founded in 2007 by Singing Teacher and Confidence Coach Lilli Badcock, the group has built a reputation over the years as a fun and supportive environment to build confidence, learn to sing and make new friends.  

It is a non-audition group and every member is given the opportunity to sing a solo, but there is no pressure to do so. Evo offers the unique combination of professional training with a huge element of FUN!  A huge part of why Evolution works so well is because it is run from pure passion and a love of performing. Cat loves singing with them.  

The choir have recently auditioned for Britain’s Got Talent, and will know in February if they have ‘caught the judge’s eye’

www.evolutionchoir.com


Behçet’s Families – Your help needed! |
December 19th, 2019

Are you a child or young person aged 8-18 with Behçet’s? Your help is needed to contribute towards new information booklets about young people’s experiences of Behçet’s. They will help to educate schools and other children and young people about your illness and how it affects your daily life.

There will be a workshop including lots of fun art activities at Alder Hey Children’s Hospital on Monday 17th February 2020. All the details are in this flyer.

If you have any questions about the event, please contact laura.whitty@liverpool.ac.uk


Donate via PayPal this December and they will boost your donation by 10% |
December 13th, 2019

Until the end of December if you’re in the UK and donate to us via PayPal’s Giving Fund page, PayPal will add on an extra 10% to your donation.

It works if you either donate to us here: paypal.com/fundraiser/112574636177901026/charity/124127 or through the PayPal app. So if you donate £20, this means we end up with a total of £22, plus Gift Aid as well if you are a UK taxpayer.

Thank you so much to all who regularly donate to help those affected by Behçet’s.


Northern Ireland Rare Disease Partnership Events |
December 5th, 2019

The Northern Ireland Rare Disease Partnership has a couple of upcoming events which may be of interest to those of you in the area affected by Behçet’s.

Their AGM & Winter Meeting is happening tomorrow 6th December from 2-4pm in Belfast. Unfortunately registration has officially closed but there could be last minute tickets available so it would be worth contacting them if you’d like to attend. Click here for more information.

There will also be a ‘Living with a Rare Disease’ information event on Monday 9th December from 10am-2pm in Newtownards. More details are available here.