Drug Recall – What should you do?

Hypertensive and heart medication containing valsartan has been recalled around the globe, having been contaminated with a substance believed to cause cancer.

One of the most important aspects of this recall is that those taking valsartan understand that they should not stop their treatment before seeing a medical professional.

MyTherapy have created an infographic explaining the key points regarding the valsartan recall.

With 1 in 3 people living with hypertension, it is likely you and your readers know of someone taking valsartan. We therefore encourage you to share the infographic to help ensure that everyone affected is aware.

July 19th, 2018

BSS 2018 AGM and Conference

Our 2018 Conference and AGM will be held on Saturday 20 October at the Doubletree by Hilton Hotel in Bristol. This is only 5–10 minutes’ walk from Bristol Temple Mead Station and has complementary parking and disabled badge holder parking on site.
The venue is fully inclusive and accessible. The hotel has some fully accessible rooms, and guests will be able to obtain the special conference room rate – please say that you are attending this conference when booking. There are many other hotels and B&Bs close to this venue, including Novotel and Holiday Inn Express (opposite the station).

Programme 2018


09:30 – 10:30 Registration and refreshments

Join us before the AGM and conference starts for a tea, coffee and pastry.
This is a great chance to meet trustees, members and families also affected by Behçet’s.

10:30 – 11:25 AGM 2018

Welcome and report from the Chair: Tony Thornburn
Financial report: Alan Lane
News from the Society: Judi Scott and Gemma Darlow
The Judith Buckle Award: Richard West
AOB: Questions from members

11:25 – 12:30  Conference 2018 – Morning  Session

11:25 – 11:30 Introduction: Rachael Humphreys
11:30 – 12:00 Post contract, how have we done? Professor Farida Fortune CBE
12:00 – 12:30 The Eye in Behçet’s Disease: Professor Miles Stanford

12:30 – 13:30 Lunch


13:30 – 16:30 Conference 2018 – Afternoon Session

13:30 – 14:00 Why are Behçet’s patients always tired? Dr Amal Senusi
14:00 – 14:30 Nutrition for Behçet’s patients: Professor Farida Fortune CBE

14:30 – 14:50 Tea, coffee and cake break

14:50 – 15:20 Diet and Microbiome in Behçet’s Disease: Dr Graham Wallace
15:20 – 15:50 Behçet’s Patient Centres update: John Mather
15:50 – 16:25 Medical Panel Q&A
16:25 – 16:30 Conference close

Tickets to this event are free to members and anyone with Behçet’s disease and their family. You will need to register each person attending via https://www.eventbrite.co.uk/e/bss-2018-agmconference-bristol-tickets-42709026849, letting us know of any mobility, dietary or other needs.

July 3rd, 2018

BSS Annual Report and Accounts 2017

Annual Report and Accounts 2017

October 12th, 2017

Bio-Behcet’s Research Trial

Click on the poster and contact details below:

August 25th, 2017

Rare Revolution Magazine – Behcet’s article

Read June 17 edition of Rare Revolution Magazine here. The article on Behcet’s on page 38!

 

August 22nd, 2017

New Booklet for Employers!

If you have Behçet’s and are in employment, then this booklet will help your Employers to understand the condition better and understand their responsibilities and learn how to help you.  If you require a copy in the post, please message on info@behcetsdisease.org.uk

2017 Behcets for Employers 24 page doc

 

April 18th, 2017

Dan – the Behcet’s Marathon man!

Dan is taking part in the Virgin London Marathon next month.   You can sponsor him here:

http://uk.virginmoneygiving.com/fundraiser-web/fundraiser/showFundraiserProfilePage.action?userUrl=DanielHumphreys3

Good luck Dan!

March 27th, 2017

International Conference report

A full report of the 17th International Conference on Behçet’s Disease, which took place in Italy in September 2016, is available here.

February 19th, 2017

Personal Independence Payment (PIP) assessment review

Have your say on the PIP assessment process!

The Government began this consultation process just before the
summer holiday ‘Personal Independence Payment (PIP) assessment: second independent review call for evidence. The consultation closes on September 16th at 5pm.

August 18th, 2016

Article on genital ulcer severity and quality of life

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4579635/pdf/13023_2015_Article_341.pdf

 

August 16th, 2016

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