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Read June 17 edition of Rare Revolution Magazine here. The article on Behcet’s on page 38!
If you have Behçet’s and are in employment, then this booklet will help your Employers to understand the condition better and understand their responsibilities and learn how to help you. If you require a copy in the post, please message on email@example.com
Dan is taking part in the Virgin London Marathon next month. You can sponsor him here:
Good luck Dan!
A full report of the 17th International Conference on Behçet’s Disease, which took place in Italy in September 2016, is available here.
The Government began this consultation process just before the …
summer holiday ‘Personal Independence Payment (PIP) assessment: second independent review call for evidence. The consultation closes on September 16th at 5pm.
A report of the Annual Conference and AGM, which took place in October 2016, is now available here.
Sioned Bourke, a PhD student at Bangor University, is undertaking some research into how the NHS funds expensive drugs for rare diseases. She is asking patients and their carers from the UK to complete an online survey to help with her research. Please click on the link below to access the Bangor University participation information page and survey (on the right).
The 2014 Conference and AGM took place on Saturday 18 October. A report of the day is available from the following link: 2014 AGM report.