New Booklet for Employers!

If you have Behçet’s and are in employment, then this booklet will help your Employers to understand the condition better and understand their responsibilities and learn how to help you.  If you require a copy in the post, please message on

2017 Behcets for Employers 24 page doc


April 18th, 2017

Dan – the Behcet’s Marathon man!

Dan is taking part in the Virgin London Marathon next month.   You can sponsor him here:

Good luck Dan!

March 27th, 2017

International Conference report

A full report of the 17th International Conference on Behçet’s Disease, which took place in Italy in September 2016, is available here.

February 19th, 2017

Personal Independence Payment (PIP) assessment review

Have your say on the PIP assessment process!

The Government began this consultation process just before the
summer holiday ‘Personal Independence Payment (PIP) assessment: second independent review call for evidence. The consultation closes on September 16th at 5pm.

August 18th, 2016

Article on genital ulcer severity and quality of life


August 16th, 2016

2016 AGM report

A report of the Annual Conference and AGM, which took place in October 2016, is now available here.

December 21st, 2015

Drug funding survey

Sioned Bourke, a PhD student at Bangor University, is undertaking some research into how the NHS funds expensive drugs for rare diseases. She is asking patients and their carers from the UK to complete an online survey to help with her research. Please click on the link below to access the Bangor University participation information page and survey (on the right).

June 18th, 2015

BSS 2014 Conference and AGM

The 2014 Conference and AGM took place on Saturday 18 October. A report of the day is available from the following link: 2014 AGM report.

August 3rd, 2014

Neuro-Behçet’s disease – international research project

An international advisory group has developed clinical and practical guidelines on the key issues in the diagnosis and treatment of neuro-Behçet’s disease to assist clinicians involved in care of these patients. Follow this link to read an article about neuro-Behçet’s disease. Click on recommendations to download the paper published in the Journal of Neurology.

June 17th, 2014

16th International Conference on Behcets 2014 in Paris

The 16th International Conference on Behçet’s disease arranged by the ISBD will be in Paris on the 17th to 29th September 2014. We are advised that the Patients Conference will take place on Thursday the 18th and Friday the 19th; it will be in English, follow this link to see the programme.

For details how to register send an email to

August 1st, 2013

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