International Conference report

A full report of the 17th International Conference on Behçet’s Disease, which took place in Italy in September 2016, is available here.

February 19th, 2017

BSS Annual Report and Accounts 2016

annual-report-and-accounts-2016

November 3rd, 2016

Personal Independence Payment (PIP) assessment review

Have your say on the PIP assessment process!

The Government began this consultation process just before the
summer holiday ‘Personal Independence Payment (PIP) assessment: second independent review call for evidence. The consultation closes on September 16th at 5pm.

August 18th, 2016

Article on genital ulcer severity and quality of life

http://www.ncbi.nlm.nih.gov/pmc/articles/PMC4579635/pdf/13023_2015_Article_341.pdf

 

August 16th, 2016

Behçet’s disease survey

Alexandra Boughey is a 3rd year psychology student. For her dissertation, she is looking at how symptom severity affects the life of people with Behçet’s disease, with the aim of publishing a paper to raise awareness. If you can help with this, please complete her survey at the following link:

Behçet’s disease survey

February 1st, 2016

2016 AGM report

A report of the Annual Conference and AGM, which took place in October 2016, is now available here.

December 21st, 2015

Get Set Behçet’s

Follow the link below to raise awareness and money for Behçet’s disease with our new tennis challenge.

Get Set Behçet’s

July 1st, 2015

Oral health survey

Lianne Dobson, a Hygiene and Therapy student at Kings College Hospital, is undertaking a project on Behçet’s disease and how it can affect people’s oral health. If you would like to take part, follow the link below to see the questionnaire.

http://svy.mk/1QhGZlY

June 18th, 2015

Drug funding survey

Sioned Bourke, a PhD student at Bangor University, is undertaking some research into how the NHS funds expensive drugs for rare diseases. She is asking patients and their carers from the UK to complete an online survey to help with her research. Please click on the link below to access the Bangor University participation information page and survey (on the right).

http://goo.gl/e9CrWw

June 18th, 2015

BSS cycling jerseys

You can now purchase Behçet’s Syndrome Society cycling jerseys from Godfrey Sports. Just follow the link below and type Behçet’s Syndrome Society into the ‘Find your club’ box.

Godfrey Sports

April 23rd, 2015

« Previous PageNext Page »