CONCORD Focus Group

COordiNated Care Of Rare Diseases (CONCORD)

The CONCORD research team would like to find a few more people to take part in the virtual focus group on the 18th November 11-2pm. The group will be discussing the types of care coordination that patients/parents and carers receive and their preferences on types of care coordination, and different aspects of care coordination. It should be a really interesting discussion. All participants will need is a computer with an internet signal. We are looking for patients (18+) and parents or carers of children or adults to take part. If  you know of anyone who may be interested, please ask them to email: or call Holly on 02031083068.

There’s more information about the CONCORD study here on the Genetic Alliance website.