What the Behcets Syndrome Society Does

Aims of the Society
The Behçet’s Syndrome Society was formed in 1983 by Judith Buckle (1950-1997). Its main aims are:

  • To provide information and support for people with Behçet’s disease and for those who care for them.
  • To provide financial aid in hardship caused by Behçet’s disease.
  • To foster education, collaboration and networking in the medical and allied professions with an interest in Behçet’s disease.
  • To promote and assist with research into Behçet’s disease.
  • To promote the formation of patient support groups and awareness of this rare disease amongst the appropriate influential institutions, authorities and decision-making bodies, and to provide them with detailed information about Behçet’s disease.
How to join the BSS Collecting boxes
The Society has collecting boxes available for use in shops, pubs, places of work etc.
How to join the BSS Contacts and local groups
Members who wish to be put in touch with others can be given address lists of people in their area.
How to join the BSS Financial aid
Grants policy – The Society will provide grants to help people who are in hardship because of Behçet’s disease.
How to join the BSS Helpline and counselling
The Society provides a telephone helpline for its members.
How to join the BSS Factsheets
List of available factsheets. All these factsheets are available free of charge from the Society, and many can be downloaded here.
How to join the BSS Society newsletters
These are issued to members, usually four times yearly. They have contributions from members and items and announcements of general interest.
How to join the BSS Personal information service
Confidential information about symptoms, treatments, centres of expertise and availability of experts can all be given to people individually and privately either by the telephone helpline service, by email or by letter.
How to join the BSS Society merchandise
Buy a Behçet’s Syndrome Society cotton bag, T-shirt, pen, key ring or wristband.